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  • Hi CC Exchange community!

    Are you experiencing declining health? Or is a family member of yours experiencing declining health?

    If your answer is yes to one of the above questions you may be interested in taking part in a research study funded by the Canadian Frailty Network and lead by Dr. Robin Urquhart of the Nova Scotia Health Authority.

    They are looking to interview patients or family friend/caregiver of patients who are experiencing declining health. Declining health is defined as someone who is over age 65, and is experiencing a loss of energy, physical ability, cognition and is experiencing health issues.

    If you are a patient, they would like to talk to you about your views on the best ways to ensure that you have discussions with their healthcare team to make their preferences and wishes for future healthcare known.

    If you are a caregiver/family member, they would like to talk to you about your views on the best ways to ensure that family members have discussions with their healthcare team to make their preferences and wishes for future healthcare known.

    Participation in this study would involve one (1) telephone or video interview (1 hour) with a researcher from the Nova Scotia Health Authority.

    If you are interested and want more information, please contact Margaret Jorgensen at 902-473-7290 or through e-mail at margaret.jorgensen@ccns.nshealth.ca

    Please spread the word with your networks.

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  • Watch Pallium's AGM live

    Tune into our Annual General Meeting livestream on Wednesday September 18, 2019 from 1:00 pm – 3:00 pm ET via Facebook: https://www.facebook.com/PalliumCanada/

    Pallium is looking forward to sharing its major accomplishments and key priorities for the year ahead.

  • Did you see that Health Canada has released micro grant funding for Compassionate Communities that are located in a official language minority community?
    I have attached the application guide for you to learn more.

    We are moving in a positive direction.

  • Health Canada recently released their report on the Action Plan on Palliative Care. The report talks about the 5 year plan to take action.

    Goal #2 Support health system quality by improving palliative care skills and supports for health care providers, families, caregivers, and communities.

    Action #8 to be taken is - Support the growth of emerging "compassionate community" projects through seed funding, starting with official language minority communities. Explore ongoing work with the compassionate community movement to increase the spread of successful initiatives across Canada.

    This is great news as this will show your stakeholders and local funding organisations that your work is recognized as important and will make an impact.

    To get your copy of this report click here: https://www.canada.ca/en/health-canada/services/health-care-system/repo…

  • Hello everyone! Sorry in advance - you'll come across this more than once as we want to make sure everyone will see it:

    I'm Cara, the Compassionate Communities Engagement Coordinator. The Exchange is meant to be informative, current, engaging, and most of all, useful to you! 

    Sometimes HOW you say something can be just as important as WHAT you're saying. For this platform to be beneficial to you, make your posts accessible and appealing to other community members. 

    Here are the top 4 tips to increase engagement of your post (see image).

    The benefits of a well-done post include more likes, discussion, feedback, and relationships with other community members-the Exchange is a great space to connect with others. Make the most of your time here by using these tips.

    I'm excited to see where higher engagement can take your posts. See you around the Exchange!

    If you have feedback, ideas, or questions, my inbox is always open. You can message me here or email me at cdavidson@pallium.ca

  • Have you filed out the survey yet regarding a common definition for Compassionate Community (CC) work in Canada? HPCO, BC CPC and Pallium are working on the creation of a Evaluation framework and then toolkit for anyone who is working with CC. Julie Darnay Deborah Sattler

    This will allow CC champions to ensure there is a basic evaluation that they can use to show the benefit of their work.

    However, the 1st step is hearing from the champions on what they see as a common definition for Compassionate Communities in Canada. So please complete the survey by June 30th, 2019.

    English version: https://www.surveymonkey.com/r/PQMVMHZ
    French Version: https://www.surveymonkey.com/r/WD3LH3F

  • Hi Palliative Enthusiasts!

    I am a Certified Hospice Palliative Care Nurse working on a project called, The Perrin Project: Innovative Palliative Care. This project combines 3 innovative methods: Virtual Reality, Simulation Labs, and Mini Lectures. These are not new methods, but together they have the potential to make a great palliative education program in many facilities. I have been a nurse in long term care for 15 years, and see the need for improved education programs in palliative and dementia care.

    The goals of this project is to build empathy, improve comfort and confidence in the care providers, and improve memory recall.

    Attaching an emotion to a lesson improves memory recall. Think back on what you remember over the years, there is usually an emotion attached to that memory. These three methods incorporate emotion in lessons. Many class room lectures, power point presentations, and text book lessons lack emotion therefore causing less retained information and memory recall.

    Virtual reality allows the learner to learn disease processes from inside out, as if you were a cell inside the body. It can also allow you to become the person receiving a terminal diagnosis, the person who has dementia and hearing a vision changes, and the person receiving end of life care. You are the patient, you see and hear the things a patient may see and hear. I learned something new within the first minute of trying this method, that will continue on with my nursing without having to look it up in a text book.

    Simulation labs are role playing. They should be done in small groups of 3-6 participants. An example of a simulation lab would be "inappropriate vs. appropriate care" where the learners become the patient, the family, and the care providers and given scenarios to act out. I have taught this method in long term care, and the learners have stated that they learned more in that half hour than any class room course, they learned what it felt like to be that patient and family. This is also the area where you incoperate dementia care methods. For example: how to communicate with a patient who is having responsive behaviors, how to provide personal care to a patient with dementia, and what things not do that can help improve the lives of those living with dementia.

    Mini Lectures are short to-the-point lectures in small settings to allow less distraction, improve group discussion and help retain information. They can be anything the facility needs: mouth care, dementia care, skin care, ect.

    This program is flexible and can be tailored per facility needs. There is no set script, no set time. There will be supporters to help with the program, and can be lead by employees in the facility, not outside sources. There are different methods this can be rolled out in the facility and can be mobile to allow short sessions on care units. The idea is to keep safe staffing levels while providing an education program.

    See my attached project paper. If you have questions please contact me at:
    Ashley.Lewis@von.ca

  • Does your Compassionate Community (CC) work need FUNDS? The New Horizons for Seniors funding program is OPEN and aligns well. The purpose of this program is to fund community projects up to $5,000 that are led or inspired by seniors, volunteer-based, and supported by their communities.

    To support champions of this work, Pallium has reviewed the funding application guide, included supportive information and created templates to help with some of the application requirements.

    Download this document to get started!

  • Does your Compassionate Community (CC) work need FUNDS? The New Horizons for Seniors funding program is OPEN and aligns well. The purpose of this program is to fund community projects up to $25,000 that are led or inspired by seniors, volunteer-based, and supported by their communities.

    To support champions of this work, Pallium has reviewed the funding application guide, included supportive information and created templates to help with some of the application requirements.

    Download this document to get started!

  • This article does a wonderful job of reinforcing the importance of community integrated care for patients and families.

    https://www.cnn.com/2019/04/26/health/end-of-life-care-uk-gbr-intl-epri…

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